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jak długo można żyć z nieleczoną ziarnicą????
142017-09-10 20:52
autor: loocas, dodał 2008-12-09 19:41komentuj


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Witam

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Pytanie może głupie ale dotyczy bliskiej mi osoby i historii która jest zbyt długa zeby o niej pisać.Chodzi mi tylko o to ile może przeżyć człowiek z ziarnicą rozpoznaną, ale nie leczoną??? Czy to jest powiedzmy pół roku czy np. 5 lat.Wiem że pyatanie jest idiotyczne ale prosiłbym o odpowiedź.Wiem również ze nie ma jednej odpowiedzi bo jest mnóstwo typów tego cholerstwa ale chodzi mi o jakąś średnią wartość.

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Dziękuję za ewentualne odpowiedzi

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loocas

autor: Babajaga, dodał 2008-12-09 20:18komentuj


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Ja przeczytałam gdzieś, przeszukując internet pod kątem informacji o ziarnicy, że nieleczona zabija w ciągu 5 lat.. Ale nie wiem, na ile ta informacja jest wiarygodna. I nie pamiętam, gdzie to było.

+0

autor: Amii, dodał 2008-12-11 01:09komentuj



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Zależy od przypadku. Można odejść już po roku, czasem szybciej lub wolniej. Mnie omal nie zadusiła, szła szybko po węzłach od stycznia, a w marcu - nie jadłam, nie mogłam swobodnie oddychać, mdlałam w szpitalu, na ulicy...więc gdyby nie szybko podana chemia, po paru miesiącach mogło już mnie nie być.

+0

autor: Edyta, dodał 2008-12-13 11:05komentuj



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po rozpoznaniu (IV stopień B)na takie pytanie moja lekarka odpowiedziała, że do pół roku udusiłyby mnie powiększone węzły nadobojczykowe. U mnie zz rozwijała się dosyć szybko, pewnie około roku od pierwszych słabych objawów które potem skojarzyłam z ziarnicą (osłabienie).

+0

autor: Loocas, dodał 2008-12-13 13:11komentuj


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> O 11:05, dnia 2008-12-13 Edyta napisał(-a):

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> po rozpoznaniu (IV stopień B)na takie pytanie moja lekarka odpowiedziała, że do pół roku udusiłyby mnie powiększone węzły nadobojczykowe. U mnie zz rozwijała się dosyć szybko, pewnie około roku od pierwszych słabych objawów które potem skojarzyłam z ziarnicą (osłabienie).

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I poradziłaś sobie z tym cholerstwem jak sądzę????Gratuluję.I zdrówka życzę.

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Loocas

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autor: Gabi18, dodał 2008-12-14 02:55komentuj


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ja zaczelam chorowac jak mialam 16 lat a rozpoznali jak mialam 18 ale jak rozpoznali to byli w szoku i kazali jak najszybciej zglosic sie na chemie...ale wiadomo co czlowiek to inny organizm a inny organizm to inne mozliwosci i wytrzymalosc

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autor: olga, dodał 2008-12-14 10:09komentuj


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Gabi 18, a skąd wiesz, że zaczełaś chorować 2 lata przed rozpoznaniem? Miałas jakies objawy? Zgłosiłaś się wcześniej do lekarza? Tylko błagam nie pisz, że jesteś kolejną "ofiarą" braku dokładności i skrupulatności lekarzy!

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autor: Gabi18, dodał 2008-12-14 12:17komentuj


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jakbym nie wiedziala co pisze to nic bym nie pisala....odkad skonczylam 16 lat jezdzilam po lekarzach mialam caly czas podwyzszone krwinki biale i ob, mialam tez wezel chlonny na szyi ale nikt nie zwracal na niego uwagi...pozniej z czasem zaczelam puchnac mdlec bylam sina zrobily mi sie nacieki na klatce piersiowej(na mostku i obojczykach)...lekarze robili mi laparoskopie nic nie znalezli pozniej wyslali mnie do psychologa gdyz stwierdzili ze jestek hipochondryczka (mimo tego ze mialam OB 90 i krwinki biale ponad 23.000...pozniej bylam u hematologa i tez ta pani odeslala mnie do domu bez zadnych badan...na szczescie w pore endokrynolog skojarzyl fakty i skierowal mnie od razu do onkologa....nie winie wszystkich lakarzy ale ktos tu jednak troche zawinil...

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autor: Amii, dodał 2008-12-14 12:21komentuj



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> O 10:09, dnia 2008-12-14 olga napisał(-a):

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> Gabi 18, a skąd wiesz, że zaczełaś chorować 2 lata przed rozpoznaniem? Miałas jakies objawy? Zgłosiłaś się wcześniej do lekarza? Tylko błagam nie pisz, że jesteś kolejną "ofiarą" braku dokładności i skrupulatności lekarzy!

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Powiedzmy, że to hipotezy lub domysły. U mnie też takowe były, bo od 2005 roku podejrzewano śledzionę i trzustkę cyt. "jakieś zaburzenia w enzymach muszą być" Kazali nabyć glukometr, sprawdzać dwa razy dziennie poziom cukru a potem, że dobrze wyglądam, wysokiego poziomu cukru nie ma, wyniki okej, czym się pani martwi z tym chudnięciem? Jak się waży prawie setkę, to trzeba schudnąć! Nie je pani tyle, cukru pani pilnuje, to i chudnie pani...

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Lekarzy rodzinnych i specjalistów zmieniałam, i nic. Dopiero jak się przeprowadziłam do Krakowa a węzły dały czadu, wpierw leczono mnie na alergię. W Centrum Onkologii lekarze rzucili hipotezę, że może już ta ziarnica zaczynała się w 2005.

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Wniosek: mniemanologia i wróżbiarstwo wynika często z niestaranności lekarzy pierwszego kontaktu. Niestety...

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autor: Edyta, dodał 2008-12-14 14:29komentuj



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> O 13:11, dnia 2008-12-13 Loocas napisał(-a):

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> > O 11:05, dnia 2008-12-13 Edyta napisał(-a):

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> > po rozpoznaniu (IV stopień B)na takie pytanie moja lekarka odpowiedziała, że do pół roku udusiłyby mnie powiększone węzły nadobojczykowe. U mnie zz rozwijała się dosyć szybko, pewnie około roku od pierwszych słabych objawów które potem skojarzyłam z ziarnicą (osłabienie).

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>

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>

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> I poradziłaś sobie z tym cholerstwem jak sądzę????Gratuluję.I zdrówka życzę.

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> Loocas

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W sumie nie, pół roku od leczenia chemią dalej "coś siedzi" opisuję to na wątku o BEACOPP-ie, węzły "przyduszacze" zeszły po pierwszej chemii, błyskawicznie. Dzięki za życzenia zdrówka, z gratulacjami jeszcze trzeba się wstrzymać :)

+0

autor: looca, dodał 2008-12-14 18:22komentuj


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węzły "przyduszacze" zeszły po pierwszej chemii, błyskawicznie.

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Co to takiego- węzły "przyduszacze"???? I jak wygląda objaw owego przyduszania?????

+0

autor: Edyta, dodał 2008-12-14 21:59komentuj



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> O 18:22, dnia 2008-12-14 looca napisał(-a):

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> węzły "przyduszacze" zeszły po pierwszej chemii, błyskawicznie.

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>

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> Co to takiego- węzły "przyduszacze"???? I jak wygląda objaw owego przyduszania?????

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nooooooooooo!

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węzły nadobojczykowe prawe tak się rozrosły maksymalny 49x69x62 mm SUV 17,2 że naciskały na tchawicę powodując duszenie, stąd "przyduszacze"-nazwa własna:)

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objaw: niemożność głębszego oddechu i ciągłe zmęczenie pewnie z niedotlenienia! spotkałam się już z "kartoflami" i "dropsami" macie inne fajne nazwy:)

+0

autor: loocas, dodał 2008-12-14 22:28komentuj


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> O 21:59, dnia 2008-12-14 Edyta napisał(-a):

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> > O 18:22, dnia 2008-12-14 looca napisał(-a):

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> > węzły "przyduszacze" zeszły po pierwszej chemii, błyskawicznie.

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> >

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> > Co to takiego- węzły "przyduszacze"???? I jak wygląda objaw owego przyduszania?????

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> nooooooooooo!

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> węzły nadobojczykowe prawe tak się rozrosły maksymalny 49x69x62 mm SUV 17,2 że naciskały na tchawicę powodując duszenie, stąd "przyduszacze"-nazwa własna:)

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> objaw: niemożność głębszego oddechu i ciągłe zmęczenie pewnie z niedotlenienia! spotkałam się już z "kartoflami" i "dropsami" macie inne fajne nazwy:)

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No właśnie pytałem bo ja mam ten objaw mam powiększone węzły obojczykowe i ten objaw niemożności wzięcia głębokiego oddechu.tzn. na 3-5 próby udaje sie jedna lub dwie z tym że nie cały czas te trudności oddechowe są okresowe tydzien ok a pożniej pare dni znowu.

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Ogólnie pod tym linkiem znajduje sie moja historia choroby i próba rozwikłania jej zagadki od ponad 5 lat choć nawet znajomy lekarz mówił mi ze w 5,5 roku z nieleczoną ZZ to byłby chyba pierwszy przypadek na świecie o którym słyszał i żebym sie uspokoił

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http://www.sendspace.pl/file/wToPnr...

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Pozdrawiam i żdrówka życzę

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autor: u0iOCw6jBs, dodał 2016-05-18 10:14komentuj


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Salam sejaethra,saya ingin tahu berapa harga bagi mengambil lesen psv teksi. bagamana pembayarannya. saya memiliki lesen D dan E.Terima Kasih.

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autor: JimmiNu, dodał 2017-09-10 20:52komentuj


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yY0b5w http://www.FyLitCl7Pf7ojQdDUOLQOuax...

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